Skip to main content

Prader-Willi Syndrome Association (PWSA)

Prader-Willi Syndrome (PWS) is a rare, complex genetic disorder, which is present from birth and continues throughout life. In 95% of cases it is not hereditary and can thus occur in any family. People with PWS are challenged by poor muscle tone, global developmental delay, an untreatable, insatiable appetite resulting in almost constant feelings of hunger, together with immature social and emotional development. Most have learning disabilities.

Visit the website which has been designed to meet your information and resource needs about Prader-Willi Syndrome

Where to Go

Name of venue
PO Box 8478
Venue address
Derby
Postcode
DE1 9HT

When is it On?

Date & Time Information
Helpline open Mon-Fri 9am-5pm

Other Details

Associated Cost
No
Referral required?
No
Notes

We are always only a phone call or email away, ready to support those with PWS and their families. We offer a range of support services, including specialised PWS clinics, supporting you through the process of applying for benefits and EHCPs, providing information to help you through your journey, and attending tribunals and appeals.

Who to Contact

Name
Patsy Lecont
Position
Support Team Manager
Telephone
01332 365676
Email
plecont@pwsa.co.uk
Website
https://www.pwsa.co.uk/
Last Updated: 01/09/2021