Prader-Willi Syndrome Association (PWSA)

Prader-Willi Syndrome Association (PWSA) Logo

Prader-Willi Syndrome (PWS) is a rare, complex genetic disorder, which is present from birth and continues throughout life.

In 95% of cases it is not hereditary and can thus occur in any family. People with PWS are challenged by poor muscle tone, global developmental delay, an untreatable and insatiable appetite resulting in almost constant feelings of hunger, together with immature social and emotional development.

Most people with PWS will have learning disabilities.

Visit our website which has been designed to meet your information and resource needs about Prader-Willi Syndrome.

Who to contact

Contact Name
Patsy Lecont
Contact Position
Support Team Manager
Telephone
01332 365 676 01332 365 676
E-mail
plecont@pwsa.co.uk
Website
Prader-Willi Syndrome Association (PWSA)
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Where to go

Address
3, Deer Park Road
Moulton Park
Northampton
Postcode
NN3 6RX
View NN3 6RX on a map

Costs

Associated Cost
No

Availability

Referral not required
Other notes

We are always only a phone call or email away, ready to support those with PWS and their families. We offer a range of support services, including specialised PWS clinics, supporting you through the process of applying for benefits and EHCPs, providing information to help you through your journey, and attending tribunals and appeals.

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