Prader-Willi Syndrome Association (PWSA)

PWSA Logo

Prader-Willi Syndrome (PWS) is a rare, complex genetic disorder, which is present from birth and continues throughout life. In 95% of cases it is not hereditary and can thus occur in any family. People with PWS are challenged by poor muscle tone, global developmental delay, an untreatable, insatiable appetite resulting in almost constant feelings of hunger, together with immature social and emotional development. Most have learning disabilities.

Visit the website which has been designed to meet your information and resource needs about Prader-Willi Syndrome

Who to contact

Contact Name
Patsy Lecont
Contact Position
Support Team Manager
Telephone
01332 365676 01332 365676
E-mail
plecont@pwsa.co.uk
Website
https://www.pwsa.co.uk/
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Where to go

Name
PO Box 8478
Address
Derby
Postcode
DE1 9HT
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Costs

Associated Cost
No

Availability

Referral not required
Other notes

We are always only a phone call or email away, ready to support those with PWS and their families. We offer a range of support services, including specialised PWS clinics, supporting you through the process of applying for benefits and EHCPs, providing information to help you through your journey, and attending tribunals and appeals.

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