Prader-Willi Syndrome Association (PWSA)
Prader-Willi Syndrome (PWS) is a rare, complex genetic disorder, which is present from birth and continues throughout life. In 95% of cases it is not hereditary and can thus occur in any family. People with PWS are challenged by poor muscle tone, global developmental delay, an untreatable, insatiable appetite resulting in almost constant feelings of hunger, together with immature social and emotional development. Most have learning disabilities.
Visit the website which has been designed to meet your information and resource needs about Prader-Willi Syndrome
Who to contact
- Contact Name
- Patsy Lecont
- Contact Position
- Support Team Manager
- Telephone
- 01332 365676 01332 365676
- plecont@pwsa.co.uk
- Website
- https://www.pwsa.co.uk/
- Scan to visit this website
Where to go
- Name
- PO Box 8478
- Address
-
Derby
- Postcode
- DE1 9HT
- View DE1 9HT on a map
Costs
- Associated Cost
- No
Availability
- Referral not required
- Other notes
We are always only a phone call or email away, ready to support those with PWS and their families. We offer a range of support services, including specialised PWS clinics, supporting you through the process of applying for benefits and EHCPs, providing information to help you through your journey, and attending tribunals and appeals.
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