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Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. 

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

Contact

Website: www.nystagmusnetwork.org 

Email: info@nystagmusnet.org 

Tel: 01427 718093

Address: 70 Hyde Vale London SE10 8HP

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

Nystagmus Awareness Day - 20 June

Thanks

 

 

Where to Go

Name of venue
Nystagmus Network
Venue address
70 Hyde Vale,
London
London
London
London
Postcode
SE10 8HP
Additional Notes

we operate a virtual service by email and telephone. Website available 24/7 for information and support

When is it On?

Date & Time Information
Office hours daily. 24/7 website support. telephone helpline office hours
Time of day
Morning
Afternoon
Evening

Other Details

Associated Cost
No
Referral required?
No
Referral and availability notes

Please self refer by phone or email

Notes

we offer support to parents and carers of children with Nystagmus in addition to adults who are in some way affected by nystagmus

Who to Contact

Name
Sue Ricketts
Position
Executive Information and development manager
Telephone
01427 718093
Email
info@nystagmusnet.org
Website
http://www.nystagmusnetwork.org
Additional Notes

we operate a virtual service by email and telephone. Website available 24/7 for information and support

Last Updated: 20/05/2021