Nystagmus Network

Nystagmus Network Logo

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. 

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.


Website: Nystagmus Network 

Email: info@nystagmusnet.org 

Tel: 01427 718093

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

Nystagmus Awareness Day - 20 June

Thank you.



Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and Development Manager
01427 718093 01427 718093
The Nystagmus Network
Scan to visit this website

Where to go

Nystagmus Network
6, Lancaster Gardens
Kingston upon Thames
View KT2 5NL on a map

We operate a virtual service by email and telephone. Our website is available 24/7 for information and support.


Associated Cost


Referral not required
Referral Details

Please self refer by phone or email

Other notes

We offer support to parents and carers of children with Nystagmus in addition to adults who are in some way affected by Nystagmus

Last Updated

Last updated:


Save to Shortlist
Is the information on this page correct? If not, please let us know.