PANS / PANDAS UK Charity

PANS (Paediatric Autoimmune Neuropsychiatric Syndrome) and PANDAS (Paediatric Autoimmune Neuropsychiatric Syndrome Associated with Strepare devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition. 

Resources for parents including diagnostic criteria and details of local support groups. 

Resources for medical professionals  

Resources for teachers and Schools 

Teacher training package 

Facebook group for parents/caregivers 

Facebook group for young people aged 12-17 with the condition. 

Facebook group for adults 

Links to further research 

Advocacy and support from the charity

Who to contact

Contact Name
Paula Scott
Contact Position
PA to Chair of Trustees and Community Support Executive
Telephone
0742 585 6181 0742 585 6181
E-mail
paula.scott@panspandasuk.org
Website
PANS / PANDAS UK Website
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Where to go

Name
c/o Baldwins
Address
1 Pegasus House
Pegasus Court
Tachbrook Park
Leamington Spa
Warwickshire
Postcode
CV34 6LW
View CV34 6LW on a map
Notes

All of Manchester covered.  We also provide support via our Facebook group:

PANS / PANDAS

Costs

Associated Cost
No

Availability

Referral not required
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

Education - PANS PANDAS UK

Other notes

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated. 

Last Updated

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