PANS / PANDAS UK Charity
PANS (Paediatric Autoimmune Neuropsychiatric Syndrome) and PANDAS (Paediatric Autoimmune Neuropsychiatric Syndrome Associated with Strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Resources for parents including diagnostic criteria and details of local support groups.
Resources for medical professionals
Resources for teachers and Schools
Teacher training package
Facebook group for parents/caregivers
Facebook group for young people aged 12-17 with the condition.
Facebook group for adults
Links to further research
Advocacy and support from the charity
Who to contact
- Contact Name
- Paula Scott
- Contact Position
- PA to Chair of Trustees and Community Support Executive
- Telephone
- 07425856181 07425856181
- paula.scott@panspandasuk.org
- Website
- PANS / PANDAS UK Website
- Scan to visit this website
Where to go
- Name
- c/o Baldwins
- Address
-
1 Pegasus House
Pegasus Court
Tachbrook Park
Leamington Spa
Warwickshire - Postcode
- CV34 6LW
- View CV34 6LW on a map
- Notes
All of Manchester covered. We also provide support via our Facebook group:
Costs
- Associated Cost
- No
Availability
- Referral not required
- Referral Details
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
- Other notes
Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Last Updated
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